Application Of Theory In Pediatric Epilepsy Nursing Essay

exertion Of Theory In Pediatric Epilepsy Nursing EssayTheories of nursing stack be presently applied to nursing put on. Middle range theories ar especially all- valuable(a) in sympathize with for unhurrieds. Recognizing that the surmise of degenerative aggrieve is applicable to pediatric epilepsy longanimouss is all important(p) to the deal of the child as comfortably as their family. The hypothesis of degenerative herb of gracefulness is related to periodic feelings of sadness that a person obtains repayable to a harm or inveterate heart dilemma. The pertinency of degenerative sadness arrive for be evaluated related to the nursing practice of pediatric epilepsy patients. Pediatric epilepsy patients and their families face umpteen ongoing problems which earth-closet take off continuing sadness at whatever given point in their lives. A scenario surrounding the c ar of a pediatric epilepsy patient and their family allow be discussed associated wi th the surmisal of continuing sorrow. The nurse pull up stakes learn from this cuttingspaper the rationale behind applying nursing theories to their everyday nursing care.A clinical Scenario in Pediatric Epilepsy The midst range nursing speculation of degenerative sorrow is apparent in many patients and families affected by epilepsy. Epilepsy is a relatively common diagnosing in the pediatric population. Chronic sorrow can be triggered over and over again with new exaltations, hold back in development, discourses and the many restrictions on living life as approach pattern children do. Nursing care of a child and family experiencing the effects of epilepsy can be challenging. An eleven year old female presented in the pediatric epilepsy supervise unit for intractable epilepsy. She had a diagnosis of epilepsy since the mount up of three months. She alike had lowly diagnoses of attention deficit and hyper exertion disorder (ADHD) and cognitive developmental delays. Her family brought her to the infirmary for a second opinion regarding treatment options for her intractable seizures. The patient is an tho child and lives at home with both of her biological parents. The patients mother acheing outside the home and the father was a high school instructor unless has made the choice to reside at home due to patients extensive needs and diagnosis. The patient att stop overs public school in a special needs classroom setting with other children with developmental disabilities. She requires the manipulation of a classroom aide due to her extreme behavioral outbursts. Physical, occupational and speech therapies are provided for her while at school and she is reported as functioning at a twelve year old long time level. The parents grassed that the patient does not socialize salubrious and well-nigh children are stately of her due to her behavior. They feel that she is challenging no matter what they do. During their stay the parents display ed behaviors of foreign coping and continuing sorrow. They often described the patient as A Dr. Jekyll or Mr. Hyde. She was observed to be pleasant at epochs, still had a short attention span. Her behaviors could cash in ones chips disruptive and she had frequent outbursts. She is dependent on others for assistance with hygiene due to frequent falls from seizures and inability to perform tasks on her own. Her father also voiced that she had signs of regression over the closing curtain year. The family has never sought services or explored resources with any epilepsy erectation. They call for also never looked into any other community services such(prenominal) as the board of Mental Retardation and Developmental Disabilities (MRDD), Wavier services or respite care. The father reported that they do no choice but to try and allot finished this lifelong dis ministration. The father appeared to be passably gruff secondary to his interactions and responsiveness towards the patients behaviors. He was and so observed on the video monitoring system to threaten the patient by masking his fist to patient. Her mother was then seen pushing his hand away and state for him not to do this because they were on camera. It is unnoticeable to why the father was doing this tomfool or if he was angry at the time, but no somatic abuse was seen. The nursing staff felt at this point that thither were many coping concerns and spoke to the family regarding their frustrations. Social work and child psychiatry were also consulted to evaluate this escalating situation. During this admission an extensive surgical workup was performed. The patient was interpreted off of all antiepileptic medication so that a seizure could be recorded and observed on the electroencephalogram (EEG). It was very troublesome and emotional for the family to hope for a seizure to athletic wearer the patients boilers suit prognosis. subsequently several days of purposeful sleep deprivation the patient began to have seizure activity that escalated to the point of status epilepticus. The seizures were able to be controlled on the unit with aesculapian examination treatment and the patient was restarted on her antiepileptic medication. afterward a week of extensive monitoring it was determined that she was able to be released home with her parents to come back for epilepsy surgery at a subsequently date.The Theory of Chronic Sorrow The middle range theory of degenerative sorrow is relevant to families of children inside the field of pediatric epilepsy. They may experience many emotions upon identification of this aesculapian problem and throughout its wariness. Chronic sorrow can be delimit as periodic recurrence of permanent, permeating sadness or other grief-related feelings associated with ongoing disparity resultanting from a sack experience (Peterson and Bredow, 2009, p.149). It can occur in the respective(prenominal) with the illness or with the careg ivers and family (Dunning, 1999). An experience of loss is usually a precursor usually to continuing sorrow. It may be a loss without a foreseeable end point. Examples of this could be the birth of a disabled child or diagnosis of a degenerative illness, or a more clearly defined loss event, such as the death of a loved genius (Peterson and Bredow, 2009). A second precursor to chronic sorrow is considered to be disparity. A disparity is a gap between the current reality and the sought after as a result of a loss experience (Peterson and Bredow, 2009, p. 149). A disparity happens when a patient or their family can not let go of the situation or the loss that has occurred. These can lead to happen experiences of chronic sorrow.Trigger events can often bring about feelings of chronic sorrow. A trigger event is defined as a situation, circumstance, or condition that brings the negative disparity resulting from the loss into focus, or exacerbates the disparity (Peterson and Bredow, 2009, p. 149). This can depend on how often the patient has seizures and the affects that they have on the childs overall tint of life. These events can also occur when the child has failed another medical intervention or is unable to accomplish an additional developmental milepost related to their chronic seizure activity. One of the most frequent triggers of chronic sorrow in parents of small children with disabilities is the regression or absence of developmental milestones (Peterson and Bredow, 2009). The trigger situations are usually unexpected and can appear at any given time. Management methods for the theory of chronic sorrow are essential in the care of the child and their family. The attention of chronic sorrow involves two different types of intervention. These types of winment interventions are considered to be versed and external. midland intervention includes in the flesh(predicate) coping throughout an episode of chronic sorrow. distinct types of action orient ed strategies are used to help the patient or family feel more in control of the situation that they are experiencing (Peterson and Bredow, 2009). native management can be also gained from tolerate groups or language to other individuals in similar situations. Interpersonal communication is another outline of internal management that has been identified in helping someone allot with their chronic sorrow (Peterson and Bredow, 2009).External interventions are those received from a unquestionable healthcare member. It is important for professionals to recognize that individuals who have experienced a probatory loss may evidence the periodic recurrence of grief-related feelings, defined as chronic sorrow (Peterson and Bredow, 2009, p. 154). Nurses can use this knowledge to provide go for to those patients or families experiencing an episode of chronic sorrow or to those that may be have an episode impending. It is important to identify whether or not the individual has any inter nal management interventions. These interventions can then be assessed, strengthened, and support (Peterson and Bredow, 2009).Chronic sorrow can affect any person and zero is immune to feeling of a loss. The emotions raised by chronic sorrow can affect every individual differently. The middle range theory of chronic sorrow provides a framework for understanding the reactions of individuals to various loss situations and adjures a new way of viewing the experience of bereavement (Peterson and Bredow, 2009, p. 151). It is important for the built-in healthcare team, especially the nurses condole with for these individuals, to be aware of the chronic sorrow and the concepts that define it as a theory. The middle range theory of chronic sorrow has a widespread application for nurses and others who strive to amend understand individuals responses to loss and to define effective interventions for those experiencing chronic sorrow (Peterson and Bredow, 2009, p. 157).Application of Chro nic Sorrow to Pediatric Epilepsy When a child is inaugural diagnosed with epilepsy, the entire family and support system can become overwhelmed. Chronic epilepsy can acquire the lives of all involved with the child. The child and their caregivers have to be concerned with medications, treatments, potency diets, ongoing tests and appointments. The child and their family also have to be aware of activity restrictions and precautions when at home, school, or out in public. This can become a lifelong balancing act. The theory of chronic sorrow becomes important for nurses to in full understand the care of a child with epilepsy. There are so many trigger events that can be experienced by these children and their families that this can become an issue that arises often. According to the literature, chronic sorrow is considered to be a normal response to an ongoing loss (Peterson and Bredow, 2009).In the article by Hobdell (2007), chronic sorrow was studied with children and families a ffected by epilepsy. Regardless of onset, patient age, or circumstances involved, chronic sorrow is an important variable to consider. The eleven year old patient and family who were cared for in the pediatric epilepsy unit had many issues that indicated that they were experiencing chronic sorrow. Their struggle with chronic sorrow began at diagnosis. Contending with the diagnosis of epilepsy and acting to overcome the inherent problems associated with this medical condition form the basis for a parents ability to cope with the care of a child with epilepsy (Hobdell, 2007). This family waited years to be blessed with this child and they were now facing the biggest uphill battle of their lives. The campaign of a childs seizures, potential complications, and long-term prognosis are often unknown (Hobdell, 2007). This patient also faced diagnoses of ADHD and cognitive developmental delays secondary to her epilepsy. This family thought that the epilepsy was difficult enough, but they then had to try and cope with difficulties in every other aspect of their daughters life. This seems to be the time when their chronic sorrow intensified. The inevitable loss of the image of an ideal child, intensified by the diagnosis of a child with epilepsy, may initiate a mourning service that varies in intensity, rate, and duration (Hobdell, 2007).The diagnosis of epilepsy has affects on the entire family as well as the patient. The patients father felt as though he had to stay home to care for her seeing as she needed regular lapse and her mother could provide more monetarily. For parents who are workings full time and caring for a child with chronic illness, the stressors related to managing work and caring responsibilities are magnified (Dunning, 1999). Her parents appeared to be involved, but were in allotly reactive to divided outbursts, which in turn seemed to increase the episodes. They were embarrassed that they were observed threatening the patient, but admittedly were not sure of how to effectively cope with the situation. Additional look into has also examined adaptation, burden of care, and stigma as variables impacting stress and the ability to cope with the diagnosis of epilepsy (Hobdell, 2007). They blamed themselves for their daughters problems. They explained that they tried to have a baby for years. later many unsuccessful pregnancies they believed that were blessed with this sodding(a) angel. When the patient started having seizures at the age of three months they were devastated and this is when the rollercoaster of their life began. Under these circumstances, it is common for parents to be reminded of the loss associated with the perfect child they once dreamed of or to experience an increased alarm that their child may not be able to live the quality of life they once anticipated (Gordon, 2009). The diagnosis moldiness signly be incorporated into daily life without it completely taking over (Hobdell, 2007).During the initial diagnosis of epilepsy the medical team explains the basics of what to expect, treatments, interventions for uncontrolled seizures, and safety precautions. The nursing staff has a very important role with these patients and their families. They can offer words of advice and examples of what others would do in a similar situation. The nurses work transfer on with these types of patients and families everyday and have a wealth of knowledge to help them feel that they are not alone. Becoming accustomed to a new way of life can be very challenging. Education is essential during the discharge process to help the family in being at ease with dealing with this new dilemma that they are facing. Epilepsy can overpower a patient or familys independence. Pediatric nursing is not only care of the children but care of the whole family (Dunning, 1999).Nurses should effectively recognize matters of concern in families of children with epilepsy. This includes impending feelings of sorrow and their understanding and utilization of a variety of management and coping strategies. The capacity to promptly acquire this selective information may comfort nurses in identifying families in need and put into action arrogate interventions. They must do this with the expectation of contributing to a more optimistic result for families of children with epilepsy. With an understanding of chronic sorrow, nurses can fancy interventions that recognize it as a normal reaction, promote healthy adaptation, and provide empathetic support (Scornaienchi, 2003). all aspect of the childs life must be addressed. These issues include home safety, personal care, school safety, driving, recreational activities, medical compliance, and social relationships. With the life-long issues that this child will face, they will need a significant amount of support from the nursing staff. Theories allow for the nursing staff to understand why a family feels the way they do and possible interventions in helping them cope with a difficult situation. The middle range nursing theory of chronic sorrow is applicable to any pediatric patient and their families dealing with the struggle of epilepsy.Adaptation occurs with both internal and external management. According to Gordons (2009) article, caregivers of patients rear support from a variety of sources. The sources of support that this patient and family have are their extended family, friends, the nurses and other medical professionals. As nurses, our interventions should be listening to someone that is enduring chronic sorrow. Internal management differs in all individuals. Sometimes they do not want to reveal how they are feeling, especially to a complete stranger. Respecting the individuals internal management strategies will allow for the most positive results. Parents see strength and courage in their child and that alone gives them the strength they need (Gordon, 2009). External management of chronic sorrow is an intervention taken on by the patients nurses and other medical caregivers. When the nursing staff recognized that there were concerns regarding coping strategies they consulted the social work and child psychiatry teams for assistance. Anticipatory guidance, support services, and community resources can be offered to these families (Dunning, 1999). Nurses begin to build relationships with their patients and their families over the period of treatment. During this time span, nurses may become aware of triggering events. Acting to prevent a triggering event or diminish its capacity may suspend an episode of chronic sorrow. The theory of chronic sorrow will be relevant throughout the ongoing treatment of the seizure activity. Sadly, in this field of pediatrics, many children and their families will have to manage with intractable epilepsy for the rest of their lives. In these cases, the family may have to suffer with chronic sorrow perpetually. When nurses have a thorough understanding of the theory of ch ronic sorrow, they will be able to provide more efficient support and help to diminish occurrences of chronic sorrow. Families who used effective adaptive strategies, such as methods to reduce the burden of illness, had a better quality of life (Scornaienchi, 2003).Conclusion The nursing theory of chronic sorrow is crucial in taking care of patients in the specialty of pediatric epilepsy. This theory presently applies to pediatric epilepsy due it its uniqueness and lifelong effects that it has on the patient and all members of the family. The approach that the nurse and medical team takes in caring for this patient can help them learn to cope with this ongoing medical problem. It is crucial for healthcare professionals to realize that the emotional response to epilepsy may have a negative impact on the child or their family. They may have difficulty in adapting or adjusting to life trades, as well as have trouble in effectively coping and working towards promoting quality of life. Every encounter with the patient or their family should focus on positive allowances. Offering support to help relieve the burden of chronic sorrow can be very beneficial for them. Reducing feelings of criminality related to chronic sorrow can help facilitate adjustment between the patient and their family. This all can allow for positive change in the lives of pediatric epilepsy patients and their families. It has been found that little re hunt club has been done regarding chronic sorrow related to pediatric epilepsy and that it needs to be more soundly explored. It should be determined whether intervention should be initiated at diagnosis with appropriate support and ongoing educational intervention. Timeliness of interventionmay have a more positive impact on the child and their family in regards to perceptions of epilepsy and quality of life.Appendix In preparation for researching literature related to the theory of chronic sorrow and pediatric epilepsy I decided the best de posit to start was Kent State Universitys library homepage. I formulated a plan ahead of time as to what kind of information was important to my search. preciously time can be lostfrom going into a search unsure of what information to look for. I then went into the research database and found that the search engine EBSCO Host would allow me to search CINAHL, Medline Plus, and Health fount Nursing/Academic Edition at the same time. I first narrowed my search by the term chronic sorrow which revealed one-hundred and xiii articles. I then narrowed my search further by adding in pediatric epilepsy which yielded one result. I switched that term to just pediatrics due to only one article available for brushup and I was then able to view twenty articles. From the results page I narrowed the articles to those that are less than 10 years old. This process was essential in decision the exact information that I needed and left me with seventeen tending(p) articles. Many articles that I fo und would be important to my literature review were not available in full text. Several of the articles were available through the Ohio Link, but due to time and distance factors to the college I found that I could access some of them directly from searching for them in Google Scholar. I found this to be the most time efficient way to access the information I needed in my literature review. I chose just the most appropriate articles available on my topic. I did this by nurture through the abstract to determine whether they would have any relevant information. After reading through the abstracts, it was seen whether or not they would be beneficial to my literature review. In doing this entire process I found four articles that were most appropriate in the literature review of pediatric patients suffering from chronic sorrow.